Research breakthroughs, child stories, events, and updates. Every story here is a reminder of why we fight.
Our research team has announced a significant milestone in our Fast Cure Plan. Phase II gene therapy trials show a measurable reduction in blistering frequency and improved skin protein production in trial participants. This marks the most significant advance in our journey toward an affordable, full-body EB cure.
Ashley's family shares a message of gratitude for everyone who made her eighth birthday possible through continued medical supply funding.
Read Full StoryOver 800 supporters gathered for our most successful awareness event, raising critical research funds in Colorado Springs.
Read Full StoryA natural compound identified in our molecular research phase shows remarkable anti-inflammatory properties in early EB tissue studies.
Read Full StoryA growing network of faith communities are partnering with No Babies Blister, significantly expanding our fundraising reach and awareness.
Read Full StoryJoyce, who battles EB, Hydrocephalus, and Cancer, recorded a heartfelt video message of thanks to her global network of donors.
Read Full StoryOur full-body systemic EB treatment approach has successfully passed preclinical safety requirements and begins Phase I clinical application.
Read Full StoryBaby Lily, with 80% skin involvement, received urgent surgical care funded entirely through generous donor contributions this January.
Read Full StoryA Colorado Springs technology company announces a year-long corporate partnership with full employee donation matching through 2025.
Read Full StoryOur digital awareness campaigns generated unprecedented reach, educating millions about EB and driving a 34% increase in new donors in Q4 2024.
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